i take my body to the repair shop to fix recent dents and bumpsthe doctor said “ do you have an ulcer “We can fix that we would like to study it”Also you may have sleep apnea
i protest’ this is a four door not a Ferrari,Give me the 29.99 special!
As my time here in medical lockdown is coming to an end, I find that other medical issues are being found to bring to my attention to try to resolve.In the middle of the night , they would like to insert oxygen to help with sleep apnea. It irritates my nose and interrupts my sleep. My doctor said it would go down in my notes but not worked on now.The issue of the bleeding ulcer is one that they would like to resolve. They took samples and want to study it. I said, Just help heal it and I will moniter the issue. Once doctors have you in their system, they want to fix all of you. I find that I am an older model and don’t mind a few nicks and scratches. Just give me the standard fix and we will call it good.Tomorrow, getting to leave lockdown.
fix and we will call it good.Tomorrow, getting to leave lockdown.
Spring scents in misty morns-crisp on the outside but sterile withinI long to feel the breeze lift my tendrils as the risen sun warms thecheeks and hands looking forward to the day
last evening , I had a low hemoglobins count and a dark stool. I thought about the questionts they asked “did you see the color?” “Have you had blood on your paper?” Now as a blind. person, I have not checked this nor asked John to do so What does a single blind person do?I ended up with a bleeding ulcer. But it could be worse.It is so important for all of us to stay up to date on our health. I could have had this issue for months. How would I know?As an aside, I was tested for the corona virus before I was given an upper GI. To keep the doctors safe.O beautiful waves of. grass encased in plexiglass
I was told that I had a rest day today. The hospital’s idea of a rest day is to get up and try to use the restroom every half an hour. Muscles stretch, arm are used arms to propel my body forward into the bathroom. I have faith that staff will team me right from left.As the day progresses, my hemoglobins drops and i need a blood transfusion . They will check my upper GI tomorrow.But wait, tomorrow is Sunday. and during the pandemic , they are scrambling to find a doctor to preform the GI.If this is their idea of rest,give me a full therapy day.
haiku dark waiting alone with my thoughts losing time
Tomorrow I will tell the outcome.
Many of us when we go to the hospital, try to eat a diet that will promote healing. We don’t always make good choices . Here comes the dietitian . . I tried to pick foods that I like and were easier to eat. last night was the worst . I ordered squash because veggies usually come in a small bowl. They took up half the plate and were between me and the macaroni and cheese. I kept finding ii with my fingers. The coffee and all drinks ar refilled to the top. Not easy to drink. I wear a towel and use 3 napkins.Meal time makes it harder to maintain independence.Tommorow I will write of home care planning.
food acrostic poem
I reach for what awaited ,could be bacon, or squashoh no! the toast in in the coffee. I give up
Today I realized that’s my bio-rhythm is much diferrrant that sightedpeople. I have bright days, gray days and grey days and finally I have black. This is not referring to a mood but actually what my mind tries to see.Today the day is bright and it will be that way until I go to bed. With knowledge k I will work harder and push my limits.So this knowledge , I will push .I have some bettI want to increase the ability to sit without pain. Also to stay on the toilet for longer time periods.I have some writing goals to include
.’Wish me luck
spring laps air in here , there is scrubbed oxygen
That first evening, I was grateful to be in a place that would give me enough pain meds and Help me to move. a fractured pelvis is the most painful because of the nerve cells firing up and down the legs from the lower back to thighs and calf’s. You never know when a sharp pain will hit, double if you with pain. You can’t trust you own body to work.The first evening I just wanted to sleep with less pain. I was not aware when I was moved or a catheter was inserted. Frankly, I felt better, I didn’t care.Now to a blind person going through a new ward, I kept my hearing aids in but I sometimes to guess what I was being asked. No one told me to drink lots of water. I may have had better luck with a reaction to Narco.The issue of eating was an ongoing issue. I wanted to be independent and. be in charge of my pain. The. staff wanted to raise my headboard quickly. I would back the staff away after they opened my tray. I had a limited reach and asked all liquids to be placed in the right front and the eating silverware to be on the left.I tryed. to eat mostly finger foods.haiku I reach for foodto feel empty platemissed again
Tomorrow Moving up to Rehab
I had 3 hours of therapy a day with one day off for good behavior . Even on the off day, I was given hand and leg exercises. I had to introduce my body to sitting upright for longer periods. Each person has to take responsibility as par of his or her treatment. That means that I share that I would wait for instruction before falling into a chair. or bed. The staff had to trust that this blind woman would listen and do what what asked.It didn’t hurt to ask a friend to make some cookies for the staff break room.I stated my preference. for one therapist over another with a good reason. Several therapists had soft and quiet voices making it difficult to understand what I was to do. This kept each person’s dignity.It helped that the pain was finally under control.I was sleeping better and sleeping better. I was not falling asleep in therapy sessions.Kindness and respect is the key. We are all affected with separation for our love ones.The next blog will include maintaining with your pants down.
Corona an acrostic. poemCold bedpans stick to the bottom.Overcome with pain of the sufferingReality sets in As I pray for the others Only now we touch through plasticNear to ve touched with glovesAny blind person can feel the care.
Sent from my iPad
The rehab unit was one floor above me.
This hospital was corona free and was in a state of lock down. No visiters or family were allowed. It was spookily quiet. I was set to meet the team and discuss my goals. When iI reported that I would to be independent , the staff thought IIwas do all the cooking, cleaning and household tasks, they seemed surprized. They were concerned that ai would use a white cane with a walker , I smiled and replied that I would attached one to the front of the walker. I was kidding but they took it seriously . I was given a half day to unpack and settle in. I was given access with a guest portals to use the internet. . What I noticed was I would be the trainer for myself. For example, I asked the staff to describe the room, They turned and started to discripe the view. “Forget the view, where is the bathroom?”
I was continued to be asked what I could perceive visuall. I continue to reply,”I see?, “I would nothing.”
I would be patient and kind and patient. I would try to smile and and smile.
My reach was decreased, and I have,
Tomorrow, the therapy begins!
A new start
with an old body
Riding. the bumps of Health care system blind
By Monday of the second week,, I was in misery. I asked for a face to face doctor appointment. It was difficult to hear and answer the questions asked by the provider. When the tablet was moved, the connection cut out and I had to have assistance to re-connect to the provider. She finally determined that the legs were swollen and may be caused by blood clots. . We were told to go into the emergency room twice in less than a week. John spoke up and said he could not get me into the car.
We had to order the ambulance. They came but wanted me to walk to the van.. I insisted to be put flat on the stretcher.
The ride was uneventful . but when we made to the emergency area, I was left alone. I was given a large array of call buttons, only one button had the braille symbol for Murse. The rest of the buttons were to access the tv. I was kept informed of the tests, exrays and ultra sound.to determine the extent of the treatment plan. I was admitted for observation . I was not informed that observation static was not covered by Medicaid.
As a blind person, it would have been helpful either having staff member present to explain the options. I was asked to sign a digital board , but I had no clue what I was signing. But I was in the hospital. The next blog will cover getting into a room.
Wait, wait, wait
for what I don’t know
not in control
May 2020 the blind and medical care during a pandemic
I first want to apologize for the grammar and punctuation errors in the first post. I had loss feeling in my fingers making typing difficult.
I will pick up the story after being sent home from urgent care. The pain meds ran out and I was in pain and moving around less and less. I called urgent care to hear my options. They said go to emergency. I was there alone, with no one to explain what was going on. There were several people waiting but keeping social distance.
Finally, I was in and getting more ex ray. I was told to go home and use a walker. The stores were closed so my husband made one.
What was different as a blind and hearing impaired person. There was no braille or recorded information. It was difficult to hear some of the medical person. I tryed to rephrase what the medical persons told me but I still didn’t grasp the seriousness of my condition.A PT home care was ordered, but once a week.
I became a semi i0-invalids and was using my husband to get up . If I heard that was a possibility I would called the doctor’s office earlier. It would have better explained with a three d model to feel the cracks.
I am alone
cocooned in my pain
to be seen
I I shelter here
in a hospital
The next post will be the ride in the ambulance .